We are pleased to announce the launch of the MdDS Registry

The MdDS Foundation, in partnership with the National Organization for Rare Disorders (NORD), has launched the MdDS Patient Registry, a study with global reach to study Mal de Débarquement Syndrome (MdDS). Let your data tell your story!

September 2026 — The MdDS Foundation, in partnership with the National Organization for Rare Disorders (NORD©), has launched the MdDS Patient Registry, a study with global reach to study Mal de Débarquement Syndrome (MdDS). MdDS leaves individuals with a continuous, debilitating feeling of rocking, bobbing, or swaying that usually begins immediately after a cruise, boat, flight, or land travel. MdDS currently has no cure.

The MdDS Patient Registry creates a platform for patients around the world to strengthen their voices and provide critical information about their experiences living with MdDS. Its purpose is to build an international resource to be used by scientists in future research.

“We believe that patients are the greatest experts in their own condition, and this registry puts that expertise to work. Our community’s participation is the catalyst that will move the needle on clinical trials,” says the MdDS Foundation.