Contact Us

We're here to help

Contact Us

Sponsor

MdDS Foundation
https://mddsfoundation.org
22406 Shannondell Drive, Audubon, PA 19403

Registry Contact

Linda McManus or Cheryl Stark
contact@mddsregistry.org for general inquiries;
helpdesk@mddsregistry.org for MdDS Registry specific questions
+1 484-232-9194

IRB

North Star Review Board
https://learningirb.org/
info@northstarreviewboard.org

Social Media

Mal de Debarquement Syndrome (MdDS) Balance Disorder | Facebook
MdDS Foundation (mddsfoundation) | Instagram
MdDS Foundation (@MdDSFoundation) | X
MdDS Foundation (@mddsfoundation) | YouTube
MdDS Foundation Newsletter

Visit the National Organization for Rare Disorders home page at rarediseases.org.

Institutional Review Board (IRB)

An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact the North Star Review Board at https://learningIRB.org.