MdDS Patient Registry

Patients accelerating research for Mal de Débarquement Syndrome!


The MdDS Patient Registry collects information from people with MdDS to help researchers better understand the condition, support new research, and improve quality of life for those living with MdDS.

For a step-by-step User Guide and instructions on how to register, click here.

For Patients

Get Involved

Information collected during this study may be used to help provide opportunities for MdDS patients and researchers to collaborate in the rare disease community.

For Researchers

Drive Research

This is a unique rare disease patient registry. Are you interested in using our data to further your MdDS research?